Thank you for praying for Kasidi Joy!
I'm so glad to have professionals fighting for her.
And I'm so blessed by awesome gals like Jennifer (the most courageous and ambitious young woman with SB I know!) and Ginna (an awesome godly mama to the most adorable little man with SB who God just happened to plant in our small church family!).
And for the good news: Kasidi's normal tendency is to walk on her tiptoes (maybe because her ankles are tight). The AFOs don't allow her to do that, and she's compensating by turning her feet inward. (I'm sure the large size of the shoes affects her step too.) We notice her losing control particularly when she's tired so this makes loads of sense!
What does this mean? We have to be more intentional about building her muscle tone so she won't get so tired and will eventually be able to carry her weight and walk. We need to keep a daily walking regimen on her schedule, as well as stretching exercises.
It also means we don't have to squeeze in another two-day trip to St. Louis before Christmas, thank You, JESUS!!!!