Back to the Braces!

This week Kasidi's therapist recommended we get back into the latest AFOs for ankle and arch support.  She's gotten so much stronger ~ she can lift the huge ortho shoes!

Back in PICU

Prayer and praise!

We are back in PICU, which is a good thing because Kasidi is under sedation till Saturday.

Of the 32 hours since surgery she's only been calm and flat less than 12.

She pulled her leads out today and bruised her pretty head flailing around.

Her incision started bleeding so finally action was taken!

We know her legs are working :).

Continue to pray for healing - bless you all!

****

As I was posting this, she woke up from sedation. You know, the sedation that's supposed to last till Saturday. That's been the problem, she hasn't rested more than an hour under any medication. That's why she's being sedated. And so after another hour long thrashing battle, she is resting again with increased meds.

Week in Words and Pix (and neuro info)

Okay, some of these are not from this week because I just got access to more grad pix! And from these pix I know I want me this camera *hint hint Daddy-O*
Little Miss Silly
A dose of reality. I might be in denial!

Kambry, the Overthinker!

Handsome guy!

Deep conversation :)

Love this!

Puleeeeeze, can I have food!

Cup o' java for the teen.

And now back to our regular programming (translated: pix from my dumpy camera)

At the grad ceremony. Pretty sure Daddy-O is asleep :)

Kambry's kreations!

Wednesday night, this is where the Littles huddled up......while hail was pounding our place.
But Thursday was a new day with an appointment with Kasidi's neurosurgeon.

We learned a lot!

First, we will schedule surgery soon.

Miss Joy has a tethered cord in the lumbar (lower) region which needs to be untethered soon. This tether could be part of the reason for the spasticity in her legs, hindering her from walking. Also, if left unrepaired it will eventually affect her bladder function and could keep her from walking, permanently. So we are going to take the first surgery date offered us.

There may also be a tether in the original meningocyle site (thoracic, upper region) of her back, but the lower is the priority.

There is a cyst on her thoracic spine which we will monitor.

She does have fluid in the ventricles, which is an indicator of hydrocephalus, but she has no other signs or symptoms of it, so we will see an opthomologist to check for pressure.

Over all, it is very good news!!!

I am still confident of this:

I will see the goodness of the Lord

in the land of the living.

Psalm 27:13

We see His goodness every single day!!!