Monday, July 25, 2011

Firsts!

Oh my goodness! Last night while Kasidi and Mama were spending some quality time folding laundry on the floor she did something for the first time ~ pulled herself up on the laundry basket, positioned her feet...then let go of the basket! I was so excited I think I scared her. We clapped in celebration :)

This is such a big deal because we don't know if she will even be able to walk. Most of the time when she pulls herself up, she doesn't seem very comfortable and her toes are curled under her feet.

BUT we got a call from Shriner's Hospital (St. Louis) yesterday, and she's been accepted into the Spina Bifida unit so we will soon get the medical scoop on our Joy.

BESIDES that... we serve a miracle-working, mountain-moving, almighty GOD!

6 comments:

quilt-n-mama said...

I am so excited for her (and for you!)
I have been to Shriners in St. Louis with a friend of ours as well! Their daughter goes to the CP clinic there and it has been amazing for them!
I know God has amazing plans for your girl!

Kim said...

That is awesome news! She is just precious!! If you have a trip to St Louis in the works, you just better be planning a stop over in our neck of the woods... (how's that for being bossy)...but really we would love to get a chance to visit again, and we hope that you know that you (yes all of you) are always welcome in our home.
Love you friend
Kim

Cari said...

whoohoo! yeah Kasidi...you go girl!

Patientlywaiting said...

That is awesome! We go to the spina bifida clinic at Children's in St Louis. Our Korean treasure is a miracle boy. He walks, runs, jumps and climbs! Praying the same for your treasure.

Hugs,
Robin

Shonni said...

That is so wonderful. And she looks very proud of herself too.

Jennifer said...

Go Kasidi! I just know she's going to continue to surprise you her entire life and inspire you with her determination.

I've heard great things about the SB program at Shriner's St. Louis - Shriner's in general is such a great place. One tiny piece of advice I have is to either ask that the clinic send you a copy of her medical records after each appointment, or keep with a schedule in requesting them every 3, 6, or 12 months. My parents' maintaining my medical records for me was one of the best things they did because it made it easy to get second opinions, I was able to look back on my own history when I got older, and when I turned 18 and had to transition out of my pediatric clinic, it made the process so much easier for me to get hooked in to physicians in the Boston area, where I ended up as an adult. I know you can't bear to think of sweet Kasidi Joy turning 18, but you know it happens! :-) Starting medical records is easy to do early in the process - the longer you wait, the harder it is.

I know you must be so curious and just craving information right now, so I hope you receive great reports on your Joy and you have all your questions answered! God already knows the scoop on her, medical and all, and the entire story of all the people she is going to affect and the ways in which she is going to change this world, and I can't wait to see that glorious plan unfold! No matter what medical issues lay ahead, He has given you and her the glorious strength in Jesus to overcome ANY challenge.

And no matter what news you get, no one in a white coat can predict the future. Doctors told my parents I would never be able to walk or live on my own and that I would be a burden on my older brother and prevent him from having a "normal" life, so I would be better off institutionalized. Although I use a wheelchair to increase my independence, especially when covering long distances, I just walked into the kitchen to get some water - the kitchen in the one-bedroom apartment I've rented for the past three years. My older brother is moving to Colorado this month, and as for being a burden on him, I just wired him money this afternoon because he ran into some unanticipated moving expenses and I was more than happy to help him out. Most of my adult friends with spina bifida also have parents who were told worst case scenarios, and today, when spina bifida is diagnosed during pregnancy, parents are given such devastating news that over 90% decide that they believe they are sparing their child pain and suffering through termination, but denying their child life only causes the parents a lifetime of pain and suffering. I know parents of young children today who were given the same predictions but decided that only God knew what lay ahead and they trusted and totally and absolutely placed their faith in Him and His provision, and those children are so beautiful, active, intelligent, mobile, social, and independent. They are all very different in terms of their abilities, but they are all living out God's unique plan for their lives and they are such incredible treasures and blessings in the eyes of their parents - our God never makes mistakes and is so good!

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