When Kasidi Joy came home at 18 months there was a lot we did not know. We didn't have a base line for the effects of her diagnoses of spina bifida and hydrocephalus. There were no images of her brain or spine.
There was a lot we did know! We knew, sadly, she had a dark beginning and someone did not intend for her to survive. But her life was redeemed! She was taken to one of the best orphanages in China and had repair surgery immediately! When she was placed in my arms I received a journal of her life which included photos of her in physical therapy.
We knew her meningocele was in the thoracic (upper) region, and it was predicted that she would not walk or have bladder or bowel continence.
We knew we loved her with all our hearts and would do everything we could to give her the best quality of life, no matter what. And so the exams began, to establish a base line.
We found out whoever performed her surgery did an amazing job. We found out her hips were in alignment. We found out her spinal cord was tethered in the lumbar region, and we had that surgery done last summer. We found out she does have fluid-filled ventricles in her brain so the neurosurgeon referred us to an ophthalmologist to test for pressure on the optic nerve and the full gamut of vision tests.
On Monday we found out her vision is perfect, there is no pressure and she has no indication of hydrocephalus!
Why are we surprised?!?
Approximately 95% of patients with SB also have hydrocephalus, and it is manageable in most cases, praise the Lord!
Many also deal with continence issues. At this time we are praising God that Kasidi does not have hydrocephalus, and she is fully continent!
They said she wouldn't walk...
but they don't know our GOD.