As I posted on Facebook, we had two huge doctor's appointments today. Their magnitude didn't really strike me until I was packing the diaper bag last night. At that time I realized that Khloie would finally see a cardiologist and we would get answers as to the condition of her heart. Khloie's file indicated diagnoses of ASD and CHD, and although we had images and reports, they were a year old. Today we would find out...
...that Khloie's heart is perfect!!!! There is NO DEFECT!!! Dr. P wants to see her again in 2 years, at which time he will release her for all normal activities. Today he cleared her for eye surgery. Father in Heaven, we praise YOU!
Then we hurried across town for Kasidi's big appointment with her pediatric rehabilitation doc. She was scheduled for her first injection of botox to relax and release her hamstring and calf muscles. Since it is done under sedation it was going to be a pretty big deal. Dr. W observed Kasidi walk, and although she has made huge progress, he wants the very best for her...so he changed the treatment plan.
He made two recommendations, and we opted for the one that would give her the most opportunity for correct mobility. Kasidi walks in a 'crouched' position, and the concern is that her brain doesn't send a message to her muscles, due to the interruption in her spine, so as her frame continues to grow, her muscles will not. Eventually, she will need a rhizotomy, a neurosurgery to destroy problematic nerve roots in her spine. The first surgery is usually between the ages of 4 and 8, but the doctor hopes to delay it as long as possible. So he has prescribed the injections to relax the muscles, and then she will complete a series of castings to help correct her ankle issues, beginning as soon as possible. She will wear 3 to 4 casts, changed weekly until the series is complete. And this will be done every six months. This is one of the things I love about this doctor ~ he doesn't just want progress; he wants the absolute BEST for his patients!
Kasidi handled the injections and the sedation very well, and tomorrow we will know when the castings start. Dr. W has noted just how determined Miss Spunk is.
We stand in awe of our awesome God, and He deserves all the glory!!!