Thank you for praying for Kasidi Joy!
I'm so glad to have professionals fighting for her.
And I'm so blessed by awesome gals like Jennifer (the most courageous and ambitious young woman with SB I know!) and Ginna (an awesome godly mama to the most adorable little man with SB who God just happened to plant in our small church family!).
And for the good news: Kasidi's normal tendency is to walk on her tiptoes (maybe because her ankles are tight). The AFOs don't allow her to do that, and she's compensating by turning her feet inward. (I'm sure the large size of the shoes affects her step too.) We notice her losing control particularly when she's tired so this makes loads of sense!
What does this mean? We have to be more intentional about building her muscle tone so she won't get so tired and will eventually be able to carry her weight and walk. We need to keep a daily walking regimen on her schedule, as well as stretching exercises.
It also means we don't have to squeeze in another two-day trip to St. Louis before Christmas, thank You, JESUS!!!!
13 comments:
AMEN!!! Following along and learning about SB from your posts! Article 5 for John Wesley will be picked up Thursday! :)
Yay! That's wonderful news!!! :) PTL!
Oh my word, you know how pics of her just send my heart over the moon!
Her smile is just THE BEST!!!
Oh and Lucy ONLY walks on her toes too!!! I'm getting concerned, actually, because her muscles are so tight now that she said it hurts to walk flat-footed. Sigh. I don't know how to break her of it!
The smile on that punkin's face is really something! "Joy" is right on the money for this precious girl!!
That is wonderful news!
She is too sweet! Look at that smile...just want to kiss those cheeks! Good news for you all!
Hugs Connie, you are a rockin mama!
Glad you got some answers. Sounds like a wonderful team!
PTL!!! That is great news!!
Oh my goodness! Love that
smile!
Just makes my heart smile!
Both of my girls wear AFO's, they both have Cerebral Palsy. I had found out a long time ago that buying the "one size up" shoe doesn't work work. They trip over their "big" feet a lot. Try getting her hatchback shoes, they are specailly made for AFO's.
http://www.hatchbacksfootwear.com/index.htm
Julie
Awesome news! Keep up the good work KJ!
Thanks for sharing all of this- we are headed to China next Wednesday to pick up our little SB daughter, and your posts have helped to prepare me for what lies ahead.
She's doing great, and is happy, and that's so important. Good luck with the AFO issue.
Michelle
Rejoicing with you friend!
Gayly
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