tag:blogger.com,1999:blog-7380988010128963744.post3568082794975532387..comments2023-10-25T08:22:27.803-05:00Comments on One More Ladybug: Those Dreaded Wonderful WordsConnie Jhttp://www.blogger.com/profile/03105757409356865785noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-7380988010128963744.post-25388641463281726252012-04-28T12:22:17.718-05:002012-04-28T12:22:17.718-05:00Your faith is so inspiring. Thank you for sharing...Your faith is so inspiring. Thank you for sharing her story with us. She is adorable!!!!Shonnihttps://www.blogger.com/profile/16652243862329017082noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-83897793918984079432012-04-28T09:27:13.084-05:002012-04-28T09:27:13.084-05:00Opposite ends of the spectrum, I know, but I felt ...Opposite ends of the spectrum, I know, but I felt the same way when Mom had her stroke and I resisted the wheelchair for a long time because I wanted my Mom to walk. I, too, finally realized it was more about her getting involved and being less tired. So sorry for that hit from the therapist, but keep helping her fight. While the therapist know what is best, in the end, you know what your daughter and your Lord are capable of. Blessings! VioletKevin, Jake and Violethttps://www.blogger.com/profile/14461429786672044638noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-21580656567196886672012-04-27T21:56:53.740-05:002012-04-27T21:56:53.740-05:00My two youngest have spina bifida and both have wh...My two youngest have spina bifida and both have wheelchairs. My 5 year old daughter uses her chair for long distances to try and save what mobility she does have.<br />Then, there is my 4 year old busy-body boy!!! He is pretty much a full time wheelchair user, which was a huge shock to us at first. Especially since we were told that he could walk by holding one hand. :)<br />But, oh my! How his world improved when he received the independence of his own chair. He thinks he is hot stuff with his bright green chair with light-up wheels. And he LOVES to pop wheelies, especially if someone is watching.Rebeccahttps://www.blogger.com/profile/08319050019922778113noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-31329959800327498742012-04-26T21:28:52.939-05:002012-04-26T21:28:52.939-05:00God's blessings to your sweet little one AND t...God's blessings to your sweet little one AND to her Momma. She is so adorable and will be even happier than she already is tooling around in her chair or her walker!Jeanhttps://www.blogger.com/profile/00219821176198096628noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-52504013564589363502012-04-25T16:03:15.055-05:002012-04-25T16:03:15.055-05:00I had a roommate (and dear friend) for two years w...I had a roommate (and dear friend) for two years who has CP. She can walk with crutches, or pushing against a wall for balance, but mostly uses a wheelchair when she is out and about. The second day we knew each other we went on a tour of the Oregon coast and she scared me half to death barreling down a steep mountain path on her crutches to get a better look at the ocean. (If I had known her better then, I wouldn't have been scared!) Then there was the semester she did adaptive downhill skiing, and the time she went on an overnight trail ride. I don't think that wheelchair is going to slow Kasidi down one bit! (But you already know that!)Linettehttps://www.blogger.com/profile/15356562657609383172noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-58786315609315409502012-04-25T07:12:12.307-05:002012-04-25T07:12:12.307-05:00Can completely relate, my friend. I am praying for...Can completely relate, my friend. I am praying for you and for Kasidi Joy... she IS such a treasure :)Stefaniehttps://www.blogger.com/profile/15929186829748543826noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-84476432197900864192012-04-24T16:57:34.215-05:002012-04-24T16:57:34.215-05:00I know it sounds weird, but a wheelchair will give...I know it sounds weird, but a wheelchair will give her so much independence! (And save some energy for working on walking.) I remember watching a kiddo I once worked with who had SB. He was about 6 and was at a football game popping wheelies in his chair on the sidelines with a pack of other little boys. Some day that may be Kasidi!Jhttps://www.blogger.com/profile/15431627102684367363noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-658361475835208452012-04-24T16:37:24.825-05:002012-04-24T16:37:24.825-05:00I love this post. So far, Kemeri is walking. She i...I love this post. So far, Kemeri is walking. She is a bit unbalanced, but we're not sure yet if that has to do with the SB or lack of opportunity to use those muscles. Regardless, I find myself in awe of her & thinking I want to grab her up & apologize for ever being worried about anything b/c I love her for her! :) We are praying for her upcoming uro testing & tethered cord surgery, but we don't focus on that. While we hope & pray & hope for the best, we know for sure that we love her b/c she is our Kemeri.Dardihttps://www.blogger.com/profile/11506811940537594798noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-18813978813370275462012-04-24T16:28:48.796-05:002012-04-24T16:28:48.796-05:00This reminded me of when they first used the words...This reminded me of when they first used the words "mental r*tardation" for Holly. Sigh. Hard to hear, even though we were not really surprised. But our sweet girl is still the same gift from God that she was before those words and we focus on that. Plus we know God is not defined by any labels or special equipment!! Hugs to you!<br /><br />Carrie T.CarrieThttps://www.blogger.com/profile/06806625193810087841noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-64206884462923441532012-04-24T14:53:28.579-05:002012-04-24T14:53:28.579-05:00I so know what you are talking about! Really why ...I so know what you are talking about! Really why would my son who only walks on his knees have any use for a wheelchair - (where is that bang your head on a wall icon LOL!) I am sure they were looking at me like I was the one with three heads LOL!<br /><br />She is perfect, AND she is in the most perfect family!Yvettehttps://www.blogger.com/profile/02537572063174399378noreply@blogger.comtag:blogger.com,1999:blog-7380988010128963744.post-89374364646369258662012-04-24T13:55:33.464-05:002012-04-24T13:55:33.464-05:00Your title is so perfect...the dreaded wonderful. ...Your title is so perfect...the dreaded wonderful. :)<br />I love your perspective, your honesty, your realness, your love for all your kiddos. Heck, I just plain ol' love YOU Connie! :) <br />Kasidi is such an inspiration. Her smile lights up a ROOM, I imagine!Lainehttps://www.blogger.com/profile/17793604475629395024noreply@blogger.com